As I lost my sense of taste from the first round of chemo on. But my sense of smell went into over drive.
The good thing, later on, was it enabled me to drink things like orange juice which I couldn't actually taste. I'd put fresh OJ in a wine glass to get the flavor via the aroma because I would never have drank OJ again if it were the "taste" I was getting as I learned to swallow again.
Everything tasted like "shit" as in, not good. Nothing tasted good. Certainly nothing tasted normal. Talk about a deterrent from eating. That will do it. Eating was as much social and enjoyable for me as it was required to get nutriment. Take away the enjoyment of eating...any enjoyment and you (most of us) will stop eating for the most part.
But as my sense of smell got more acute the smell from charred flesh (at least it smelled like charred flesh) in my throat became nauseating. My wonder dog Marley 's breath became unbearable no matter how much he wanted to comfort me (and he really did daily). I wanted him snuggled to me on the bad days. And he made a point of doing so. What a treasure he was during the entire time.
But I started wondering if he might die before me because of how his breath the smelled. He is just 4 so his breath is actually just fine for any one with a normal sense of smell.
Poor Tracy. She caught the "act" and knew I was having problems with everything that related to smell. Even being kissed had become unpleasant because of the smell. Or at least how my brain was interpreting the smell. Never said things weren't getting weird.
Friday, October 23, 2015
The ride this day took us out of sight into the high country in the distance.
Three years ago on 10/17/12 I started chemo.
It has been a long journey from there to here. More than I ever thought possible to be honest. Just goes to show you how naïve I really am.
At the moment I am cancer free. But Cancer and the treatment that hopefully results in you staying alive a while longer are the "gift that keeps on giving". I generally use "giving" as the meaning for a painful and very negative "gift".
But on occasion I also mean it really IS a gift that keeps on giving...in a good way. You just have to look for them. Some time you really have to look hard. But what you usually find is a treasure if you can only appreciate it. It has taken me some time to appreciate the "gift".
Weird that I ended up wanting to write this after yesterday. I have aged untold years in the last three. Both physically and mentally. Not all bad but not all good either. Knowing now all too well no one lives forever. News flash! I know everyone generally gets that a little earlier in life but not me.
Twenty years ago Tracy and I moved to Issaquah from Spokane. At the time I had just started to ride a horse again after spending 1/2 my life as a kid riding and our family owning a few. But I was never a true horseman. Oblivious to all that. You simply had to ask and our horse just "did". We didn't ask much of them. One had to look to my Grandfather, William to see true horseman skills. William kept horses all his adult life and rode consistently well into his late '70s. Buying his last Colt as a saddle horse in his early '70s. It was a legacy I almost missed from my family and until recently never really appreciated. Although my father was no stranger to horses and shoed ours when required, horses were simply tools for him, nothing more.
Me? I have always enjoyed and loved animals. Loved being around them when convenient, a lot of work and tiem required the rest of the time. But I was never been responsible enough to really take care of a dog let alone a horse until I was in my late 40s and in a comfortable and supportive relationship. I had a lot to live up to with my Grandfather keeping his ranch horses, Dick and Silver until they died, at the age of 39 and 41 years old...just weeks apart, while living on his ranch in Wheatridge, Colo.
Dick and Silver were the horses all the kids (my Mom, Aunts and Uncles) and us, the grand kids learned to ride on. My Dad on the other hand was born in Texas, and grew up in New Mexico...enough said :-) It was my Grandfather that was a horseman in the way we want to think of "natural horsemen " and the vaquero horsemen today. It was my Mom that picked that legacy up and passed on what she knew and had seen to her children.
My trusty stead, Sir Brazen Dreamcatcher in a calmer moment later in the morning as we ready to leave for the day.
Just after sunrise and Brazen is now WIDE awake and likely thinking, "Holy chit dude! We aint in Duvall no more! This is BIG sky country with COWS! And I aint liking it...."
I do know Brazen's and my relationship is good for me. Poor guy, he's forced to put up with me. I suspect he only really tolerates it because I feed him good stuff on a semi regular basis. And I like to play fetch.
Been awhile since I have smiled watching the sun come up while freezing my ass off!
Thank goodness for the new Birthday Jacket! I only hope I'll still be riding a decade or two from now.
Borrowed Tracy's new saddle. It is mighty fine ride! Thank you!
Loaded for Bear or Wolves in this case...a ivory (preban of course) handled six shooter and a knife :)
Heard the wolves several times. Never saw them. Then heard and saw the elk. But too fast for me to get a picture.
Top of that hill is only another 3 hours and 3000+' gain away.
Some scale to the previous picture
600' up and Brazen's first breather.
Miles of basalt scab land....all going up or down hill. We climbed 5000' in 12 miles and decended 5000' I nthe next 12 miles.
Not hard to see why he gets call "Snuffy" with that lower lip..some of it is an optical illusion :)
Gentle now, Brazen gets embarrassed when people laugh at him.
A South East facing meadow with dozens of Elk beds.
And more hill to climb to hit timberline.
Plenty of Mule deer...
Straight on to the Mesa at timberline and then around to the left for another 20 miles
More Mulies. But only three of the dozens I saw on this ride.
The first of only two gates in a 25 mile ride.
Mid morning, the climbing mostly done and my Boy is starting to slow down some.
We came up from the flat lands via the ridge line on the left, made the first half of the big circle and are on the way home now.
Fall colors were spectacular!
The ups and downs reminds me of the Salmon River Country between Grangeville and Riggins where I spent some time as a kid. We rode in from the sky line on the right. Where the sky line ends left of center we side hilled to here. Strong day's work for a city horse.
Back at the trailer and 20 minutes from sunset with one rode down caballo!
Never seen Brazen stand and ignore good clean COB.
"Geezus! That was a long ways around there Danester! I think, I feel USED!"
Posted by Dane at 11:41 AM
Thursday, August 8, 2013
Thursday, December 6, 2012
Year to date, yesterday, on the last dose of radiation. I had no idea then that the journey would take so long on a road so short to get to where I am today.
That realization however kept me awake until late in the evening, simply being thankful I am here now and where I am at.
Never has the journey meant more to me than the destination.
That realization however kept me awake until late in the evening, simply being thankful I am here now and where I am at.
Never has the journey meant more to me than the destination.
Posted by Dane at 11:37 AM
Sunday, September 30, 2012
Pat's story is inspiring!
"Hi Dane, I was diagnosed with cancer in 2006 and it taught me many lessons and i learned a lot and am still learning heaps, 11 months ago i had the biggest surprise of my life when my girlfriend told me she was pregnant after i came home from a climbing trip to Turkey, we were told because of my cancer i would never have children!! I tried to share my story on your blog but it was to big so i will share it here with you.......... if you want to share it further feel free to repost in whole or parts. Stay strong, believe in yourself and your inner strength, its a personal fight. Look forward to catching you soon...... Pat The Beginning In 2006, I first started getting a pain in my groin area when I lay down, I thought I was just doing to much sport, hockey, football, running and had just started climbing. I went to my family doctor. After a routine examination, she said she was not sure, but to go away for the long weekend ice climbing anyway. Terrific, just a strain! Whilst I was away my doctor left me a voice mail to say she had booked a scan, just a precaution. "Yes," the lady scanning me said, “something’s not quite right”. She showed me on the monitor one testicle was just black. She said to wait there whilst she would see if the Urologist was around, he could see me straight away, I was starting to worry now. I sat in his office as he looked at the scans, he turned round and said you’ve got Cancer. Shit!!!! Bollocks!!!!! (hey but not much longer) But I don’t feel ill, I’m not sick and I’ve got no lumps or bumps and I’m only 35 years old. I have never done drugs or smoked, ok I like and drink or two with my mates, “are you sure” I think I asked, although some how I already knew, he was just confirming it. What now? getting good medical treatment is only the first part of the secret. The other part, the personal part, can be much more agonizing. It means getting your head on straight and preparing yourself to deal with some very critical emotional problems. I knew that, win or lose, I was in for a heavy emotional trip. But I decided that, win or lose, it was going to be a meaningful and beautiful trip. I'm still working on it, and I'm doing the best I can, but it's not easy. I'm learning how to live, and I wasn't prepared for the hard work of living. First comes the bad news, then the good news. The Bad News: Fear of Dying Death is unknown by the living. There's no one around who can tell you what being dead feels like, so you're not so worried about that. The real bummer is to die without having experienced what living feels like. That's the real cheat. Most people suffer from the fear of living. Don't do this, don't do that; it might involve pain, it's too risky, it's too chancy. Not too much pain, not too much joy, just keep to the middle road with your head down to miss the flak. Then you get slapped with the message that says: You have cancer. You make a quick choice. Fold or go for it, back off or make that move, have your last swing on the merry-go-round. It's very tempting to cash in your chips and tear up your membership card in the human race. You might voice your fear of dying by wondering, "What if I gave a funeral and nobody came?" Self-doubts begin to play tricks with your head, like, "Does anyone give a damn whether I live or die?" You begin to see and hear evidence that nobody does. No one else seems panicky, just you. The doctor is cool, scientific. Your mates and parents are cool, sad-looking. Your work mates are cool and have a few sad, sympathetic words that sound like "have a good trip" (to wherever), “or hang in there mate” (you fucking bet). Maybe you pick on God. "Why me, you son of a bitch? What did I do so bad you want to kill me, you God-creature who decides who gets the short end of the stick?" Punishment for dimly perceived wrongs? Gray, lurking sins from memory past? No you’ve got to focus, I’m only 35. Fear means "they" have suddenly caught up with you. ________________________________________ Time of Death: Unknown The emotional strain begins with "Am I going to die right now? This week?" Then it becomes "When will I die?" The how-long-do-I-have-before-I-die refrain goes on and on till the end comes. This strain is sometimes unbearable when overlaid with other, preexisting emotional problems. All your self-doubts or long-suppressed fears then become major complications. The uncertainty of your personal time of death forces upon you a unique philosophical dilemma: What do you do in the time you have between now and the time you die? And you don't know exactly when that will be. You have to be prepared to go at any time-and on short notice. Time begins to have a different meaning for you. Time begins to mean now. Even this breath, this heartbeat. Life becomes a numbers game. Without treatment, a 99.999 percent chance of dying. This year's treatment is better than last year's by X percent. Brand X cancer has a 90 percent death rate. Brand Y cancer has a 10 percent death rate (providing Z circumstances are the same). If you live 6 months after apparent remission, odds improve that you'll live for 2 more years; 5 years clean, odds are good for a go at 15. Everything you do, everything the doctor does, everything in your emotional outlook and your environment changes the odds on your living or dying. Some of you will say, "I could get hit by a truck and die tomorrow!" Yes, but if you never step in front of a truck, you can affect the odds greatly in favor of your living. Once you have cancer, you have bad numbers to work with and you still have those damned trucks to worry about. (For all this I get a "hang in there, baby"?)________________________________________ Relating to Others Because you have cancer, you will have problems relating to others-family, friends, people at work, in groups. You feel different about yourself and feel that others are treating you strangely now. You speak the word "cancer" and people step back from your breath. It's frightening because nobody knows what it is, what causes it, where it comes from, or how you catch it. It's unpredictable. You can have it and not know it. You can live with it for twenty or thirty years. Or you can die from it next week. You may get it, be treated, feel fine, and die sixteen years, six years, or six months later. There are no guarantees available for any of it. Work becomes a problem. six months lost in a Chemo haze. Ten days lost with surgery. It is still a fight to keep the business going. Company's insurance premiums increase. Mine cancelled, you’re too much risk, but you don’t know what I do in my spare time, climb rock and bloody large mountains, sod the cancer. You are the one who has to bring home the beastly news that cancer has struck. You say the word: cancer. Tears. Crying. Grim fright. Controlled terror. Helplessness. What would you say to someone you love who has just told you, "I could be dying"? "Don't go." "When are you going to die?" "How can you do this to me? You search for some way to express your love, but words stick in your throat. Trying to breathe is more important than saying everything that is rushing through your head. The best that you can do is tell them how much you love them, but wishing you had someone to hold you and tell you its going to be ok. Your aging parents are fearful of their own deaths. They can't bring themselves to even mention the word "cancer." They don't mention it . (Are they the ones who don't come to the funeral you give?) Needing love and wanting to give out all the love in your body and heart before it's too late. (Last chance before dying.) All of a sudden I have this desperate urge to see all of my old friends, all of my old places. Where I was born. Milestones in my history to date. Tell old friends in faraway places that I love them. Let them know they made me happy. Thank them for caring. Maybe they'll let me know they care too. Please tell me I left a shadow. New friends withdraw. Why risk sorrow and pain by caring, getting involved, investing in someone who will leave you? You die, they cared, they hurt. You hurt them. So you withdraw like a wretched mongrel. You don't fit in. You're only temporary. You go out or meet people, they say you look well considering, but looks aren’t everything "Hang in there, baby"? ________________________________________ Side Effects For those people who didn't have unusual discomfort before their cancer was discovered, the treatment becomes the disease by association-the trauma of surgery that leaves you disfigured or missing a limb, an eye, a tongue, a testicle, or a breast. Half a face. Not quite human. But I’m only going to be sitting in a chair while they pump some chemo into me, how hard can that be! Ok I can’t sit still for two minutes let alone a whole day or week. The hair-raising ( or should that be hair losing) drama of chemo. Lets find a real bad concoction of drugs and chemicals, but don’t worry it should work, it has on some others already. The eerie, but kind of comforting beat of the pump that doesn’t leave your side for weeks on end. Getting sick to your stomach and throwing up, you thought a hang over was bad, but hey this is some session! Chemotherapy injections three times a day, preceded by a shot in the arm or butt that knocks you out for hours so you won't know about the searing agony your blood and veins are going through. Then there are the little things listed under "side effects of medication and treatment," such as loss of hearing, feeling, taste, coordination, hair, or teeth. Inability to chew, swallow, speak. Sterilization or reduced potency/fertility. Arthritis symptoms, rashes, the biggest spots you’ve ever seen, getting fat, loss of muscle and cartilage. I leave hospital between chemo cycles, “see you next week”, more like one or two days, I can’t stay well, fevers, high temperatures, sickness and lack of red blood cells, “inject yourself with this, it boost the manufacture of red cells, oh it may hurt but atleast we will be able to keep to the chemo regime”, later on no red blood cells, “ can’t stop the chemo now, so we will have to give you transfusions”, “OK what ever”, I’m passed caring they could stick what ever they like in me now. . I used to be fit, I can hardly walk and the stairs are really hard work, will I get fit again? Cancer? The treatment was the worst thing that ever happened to me in my life. ________________________________________ Living with Cancer "The prognosis is good," says the doctor. Evidence of remission. Blood count rising again. Weight stable. Drop plans for chemistry maintenance program-not needed. Life signs good. Normal recovery from surgery. Scar tissue normal for surgical operation. Now you are faced with the problem of living with, or at least adjusting to, the side effects of cancer treatment. The doctors don't worry too much about the side effects. They're more concerned about keeping you alive. They consult with each other out of your earshot, they think. "Radical surgery!" "Massive totalbody chemo!" "Latest drugs, superstrength!" "Kill that cancer now!" "Save this person's life!" Okay, doctors, you saved my life. Thanks. But how do I live with what life I've got left? Even if the cancer threat is reduced or removed and the patient survives the threat of death from cancer, the person must adjust emotionally and physically to disfigurement, dismemberment, sterilization, or other side effects of the treatment. What say you now, cosmic counselor:" I remember as kid checking for monsters every night under my bed, now this monster has me checking every night again and it visits me most nights too. Hang in there, baby"? ________________________________________ The Good News: A Philosophy for Living Not wishing cancer on any living thing, I must confess it was the best thing that ever happened to me. I'm glad it happened, because now I know what living means. I was forced to come to terms with the concept of death, with heavy questions like: What is the value of death? What is the purpose of living? How do I live the lifetime I have left? The prospect of death forced me to look at the quality, value, and purpose of my life. I had to come up with some quick answers and now there are still more answers needed if I want to use the time allotted to me. Some answers came, without my asking and lots are still unanswered. I had spent months alone with my worry and anxiety, wondering how I got picked for this death number. I remembered stories about a God. Somebody in power who could make deals. The really important deals. I planned my case. I worked up my brief for the judge. If there was a God, I figured, and if this God had something to do with this bad rap, maybe this God would buy my deal. Maybe this God wasn't merciful, but maybe this God would be susceptible to a good trade. The bargaining began. I laid out what I had to offer, going through the details of my life--good points, bad points, the potential in me. I was asking for a future. Some time to be in. Let death pass me by this time, God. What do you want of me, God? What price life, God? The answers came one Saturday morning when I arose early, fixed a cup of coffee, and waited for the sunrise to come to my tent in the Peaks. I was wrapped in a warm sleeping bag, thinking about this world I share with everyone. The conditions must have been right for a proper meditation, for my mind was free of my body, of the world, to roam over vast stretches of the universe in search of the answers. I perceived answers to questions I didn't even know I had asked. A feeling of understanding and unity came to me. I felt at peace with all things living or having energy. That tree, that sparrow, that flower, that rock and I were one. Equal. You are you, and I am I. Each of us has a meaning, a purpose, a shared existence. Some of the answers came. The purpose of despair is to make us hope. The purpose of pain is to give joy its desirability. The purpose of death is to give life its value. Death offers nothing; living includes everything. Living is experiencing all the feelings a human existence offers. Accept what comes; good and bad are equal in value. Risk. Risk asking yourself for all the strength within you. Risk disappointment in order to achieve a greater sense of participating in life. Risk loving someone as much as you can. Do. Do as if you will achieve everything. Accept the pain when it comes. Accept the fear when it comes. Suffer the suffering. Accept the joy, the excitement, the peace, the tranquility, the love that comes from others and from yourself. Use the negative to direct you to the positive. Walk through the valley of the shadow of death; there is a better you on the other side. The sun is warmer, the people are friendlier, life is sweeter. Your vision is sharper. You can see and hear, with your mind and imagination, things you could not perceive before. “You don’t need eyes to see you need vision” Faithless You will have understanding. The benefits of a full life, but no guarantee on the life span. I accepted. The bargain was struck. There are still many unanswered questions, but hey that’s my life now, today is always better than yesterday. What I have learned At any moment that you find yourself hesitating or if at any moment you find yourself putting off something until tomorrow that you could do today, then all you need to do is glance over your left shoulder and there will be a fleeting shadow. That shadow represents death, and at any moment it might step forward, place its hand on your shoulder and take you. So that act that you are presently engaged in might be your very last act and therefore fully representative of your last act on this planet. When you hesitate or wait for tomorrow, you are acting as if you are immortal."
Posted by Dane at 3:44 PM
Saturday, September 22, 2012
I want to know if I am in the black on a target. Is it in the X ring or just a 10? I want to know how many pull ups or sit ups I can do and my blood pressure and resting HR every morning. My Max HR on the bike and the same a run. And I want to know what my dbl boots and my bikes weigh to the gram.
I measure because I want to do better. If you aren't measuring how do you know if you are doing better? The fact is you don't. The flip side of that is if you aren't getting better you are getting worse. If you don't measure you don't know what is better or what is worse. There is nothing that takes any kind of physical skill that stays the same for long. Use it or loose it. Measuring it will help you keep it or better yet, get better at it.
This is the first cross post I have done. But it seems really appropriate. I found my cancer (yes I originally found it, not my Doc) because I keep track of my resting heart rate and recovery while climbing and working out. There were several indicators that I was sick. None obvious and all were very subtle. None of them would have indicated cancer. To the point at my annual physical, that I intentionally did early, my family Doc said, "don't worry, it is NOT cancer". While I never even remotely thought I had cancer I did know something was wrong, seriously wrong. My resting heart rate would not come down to normal. I was gaining weight no matter what I did for exercise short of starving myself and I wasn't recovering from hard physical efforts like I typically would. I was being told, "it is just part of aging." And I started calling "bull shit".
Thank God I measure and keep track of things. Because cancer is best treated as early as possible. I was diagnosed with stage 4 cancer. The cancer had already metastasized from my throat to my lymph glands when it was found.
If I had left my family Doctor's office and gone by what he said my prognosis even a couple of month later would have been a lot different. As would have been the cure and then the even longer recovery.
My suggestion is eat better, exercise more and keep track on a daily basis of what your body is doing.
It is never too late to start. Try to get your loved ones to do the same.
Posted by Dane at 11:53 PM
I got and email the other day from a climber asking about climbing and the aftermath of cancer and getting fit again that got me thinking about writing here again. Here is my answer:
"Cancer? Wow, just got back from my 2nd after action PET scan a few minutes ago. One year out from dianosis myself. Good for you coming up clean. Physically I am still surprised how tired I can get for seemingly no reason. One day I can run 10 miles or bike 200 and the next week or next day for unknown reasons I'll be exhausted by something I have no clue about. So that is really weird. Big thing for me is eating right. Still hard to eat most things with my fried throat and back of my mouth. Bigger yet I think is the amount of sleep I get. I now need 8 full hours and generally more is better. It is getting better but that is the one common denominator...lots of sleep. Lots of sleep. I've ridden my road bikes back into reasonably good shape and because I am so much lighter I am running again. Climbing is way more fun and not nearly as hard. But I lost a LOT of muscle mass as well. More than I cared to admit. So I need to be lighter because I am not nearly as strong. At least for me the mental stress or lack of it (running/swimming/biking) all stuff I have done since I was a kid have really helped. Chemo fried my brain a little as well. My memory isn't as good, I can't concentrate as well for long periods of time and I get stressed much, much easier. Hard to get wound up for the hard leads now as well. Possible but really different now. I literally flip some kind of mental switch on leads now. Very weird. How you must suffer for a serious workout schedule was beyond me until just recently (last month or so. You know, the really hard hammering, gonna puke kind of workouts and long days? I am just barely starting to get there now where I use to gobble those days up like candy. I hope that helps some. I don't know anyone who has been through Cancer of any type that is reasonably fit or climbs let alone rides a bike. Lots of women in the Tri scene but breast cancer is so different than what I had. Every cancer is so different and the treatments just as different. None of them fun by any means or suppose to do anything besides kill the cancer. What it does to the rest of your body is anyone's guess is my take on it. My suggestion is just give yourself some time. Took me a couple of months before I could even face the possibility of having to go back and start over. (Cancer or fitness) Then one day I woke up strong enough to think I was going to be "OK". My wife ( the real hero here) has a saying, "fake it till you make it". Which is what I did till one day I wasn't faking it. Then I started to get stronger even though it was months later. Today I feel pretty puny after the CT scan and am faking it again. But that too will pass eventually."
Posted by Dane at 2:55 PM